Another day of progress! Tuesday September 12,2017

"It does not matter how slowly you go so long as you do not stop."
                                                                                          - Confucius

Today Blair was off his ventilator all day (after being off it all night).  This is progress!  His oxygen level didn't drop below 99% so he will remain off the ventilator unless he shows that he needs some assistance.  We are hoping they are able to change the tracheotomy tube soon.. but waiting on the doctors to tell us when.  A smaller tube would allow him to speak instead of write things out - and he is tired of us trying to interpret his handwriting!

Blair also assisted the nurses, by holding his own body weight, when being transferred to the chair to sit up to 'exercise' for the four hours this morning and afternoon.  He was able to (with assistance) take a step or two in moving to the chair.  He does get very worn out after these times of exercise... but he keeps doing them and completing them in spite of his exhaustion!

The nurses have found that as long as someone is in the room he is unable to really sleep well.  So, he has to have no one in the room for him to get a good nap after exercise.

I am trying to make sure he has visits from those that love him daily, although, not have him overwhelmed with many people all at once.  Evenings tend to be the busiest times - so if you can visit during the day - please do.  He is most awake in the morning after 8:00 am and typically no one is there (visits start at 9:00 am).

Thanks so much for following ... and praying for Blair!