On Tuesday Blair's tracheotomy tube was given the cap that closes it off so that he is one step closer to having it removed. The doctor told me he needed to have that for two days and they could take the tracheotomy tube out! He would LOVE that!
He was still eating pureed food but he was told that he was changing to grounded up food - so that it isn't blended to a pulp. After a few days of grounded up food, they will changed to mashed food, and then to a little more chunky, and so on. He can't wait to eat real food again! He will have the feeding tube in his stomach for six weeks from when they put it in, but they can remove the food once he is eating enough calories that he doesn't need it. Then it will just be taped to his stomach and it will be easier to go outside (without a pole behind him).
He saw the orthopedic doctor and they took the cast off his arm and gave him a brace that he is wearing now. Progress!! When I saw him briefly he was in a great mood - he said his tracheotomy tube was "upgraded" to the cap, he didn't have a cast anymore, and he was eating food (although creamy). It's the little things in life that make you happy!!
I got him registered for school, so the school will communicate with the rehab about what he needs initially - and when he will be healthy enough to return. He said he just wants to be back at the high school (CV) and is looking forward to his future.
I am hoping to get up there today - and get an update - so will post again later! Thanks for your prayers! Keep praying!
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