Friday, September 15, 2017

Moving on ... Thursday / Friday September 14 & 15, 2017

I didn't have the energy to type last night... so I am going to put both days together.  :)

Yesterday Blair was even more communicative and telling the nurses what he wanted and when he wanted it.  He found his 'call' button - so the poor nurses are at his beck and call.  :)   He is still communicating by writing things down for you - or hoping you can read his lips.  He is being very sweet and appreciative!

For those of you who know the last year or so... I do want to add - Blair initiated a hug with his uncle last night - and that was really sweet!  His uncle isn't a "huger" so to speak, and Blair has had a strained relationship with him for some time now... and he does remember that.  I asked him if he wanted his uncle to come visit and he said yes.  When he arrived he shook his hand, was happy to see him, and then gave him a hug goodbye!  It was good for my heart to see... as I love them both so much!

The doctors finally put in a smaller tracheotomy tube - a 6.  They have not put the valve on it that would allow him to speak but that will happen when they start speech therapy.  The speech therapy should start when he gets to rehab.

He is doing so well that the doctors determined he was ready to go to the rehab and work on rehabilitating now instead of next week sometime!  They submitted the request to the insurance company today... hoping tomorrow they get a "yes" from the insurance so they can transport him via ambulance to the rehab.  Blair is really looking forward to getting out of the hospital!  The rehab is Penn State Hershey Health Rehabilitation Hospital (website: https://www.psh-rehab.com/).  The address is 1135 Old West Chocolate Ave. Hummelstown, PA 17036.

I contacted the school today about re-enrolling him.  I have to fill out some stuff on line and they are working on getting all his information together that they have from his previous attendance.  They are more than happy to work with the rehab to continue educating him so that he can complete high school as soon as possible (no promises on this year - but that is the hope!).

Thanks so much for your prayers!  God continues to amaze me!

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Sunday January 21, 2018

Tomorrow Blair goes back to school for a little over half a day! He really wants to be able to go for the whole day but the doctor told him ...